Big Data for Health & Care: The Arisal of Data Spaces

In recent years, a series of health data spaces have arised. However, at the moment, the strategic oversight is lost and many questions remain. For example:

• Which data space initiatives are out there?
• How do they relate to each other?
• How will they work together/in synergy to maximize the impact?
• How will this affect the local data management at the level of the individual data partners?

With this symposium, we aspire to facilitate an in-depth exploration of data spaces and research infrastructures, elucidate challenges and best practices for large-scale projects, and engage in a panel debate on the feasibility of implementing and integrating various data spaces at different levels, all underpinning the advancement of healthcare data sharing and research.

The event plans to highlight different Belgian data spaces and to delve into profound discussions during panel debates, exploring complex topics like challenges and future perspectives in health data sharing and analysis. As i~HD will co-moderate the event, the bridge towards Europe is guaranteed.

Target Audience: The symposium is tailored for health data enthusiasts from Belgium and neighboring countries. While expecting diverse attendees, both beginners and experts, we are aiming for accessibility without compromising depth.

In our sessions, we explore a wide array of dimensions, ranging from geographical nuances to various data types and the complexities of transmural care. We delve into the intricacies of first-line care, hospital settings, and innovative mobile healthcare (mHealth). Furthermore, our exploration extends to discovering the transformative potential inherent in different data types, encompassing everything from imaging to -omics and harmonized clinical data. #JoinTheJourney

All speakers are asked to touch upon the following questions in preparation of their talk:

• What are their “why” and expected clinical impact?
• Which socio-technical challenges are they trying to address?
• What are their main achievements so far?
• What excites them for the future?

10:00-10:10 | Meeting Start (Welcome)

Liesbet M. Peeters (UHasselt) & Dipak Kalra (i~HD)

10:10-11:20 | Session 1: Borderless Insights - Unveiling Opportunities & Challenges in Scaling RWD across Limburg, Flanders, Belgium and Europe

Moderator: Liesbet M. Peeters (UHasselt) and/or Dipak Kalra (i~HD)

• Keynote 1: Setting the scene - introducing the European Health Data Space and explaining the overall challenges of scaling-up health data and how they are currently handled at the European level
  Dipak Kalra (i~HD)
• Health Campus (province of Limburg)
  Piet Stinissen (UHasselt)
• Department of Care
  Koenraad Jacob (Department of Care)
• Belgian Health Data Agency (HDA) and Data Governance at Sciensano
  Sofie De Broe (HDA & Sciensano)
• Panel Debate session 1

11:20-11:40 | Coffee Break

11:40-12:50 | Session 2: Breaking Barries - Navigating RWD Challenges from First Line to Hybrid Digital Care in Transmural Integrated Settings

Moderator: Liesbet M. Peeters (UHasselt) and/or Dipak Kalra (i~HD)

• Keynote 2: Enhancing Hybrid Digital Healthcare - Principles of Quality Assurance in Digital Innovations
  Christophe Maes (i~HD)
• First line (General practioners), Intego and Population Health Management
  Bert Vaes (Intego)
• Unlocking Belgium's health data reuse potential: the RWD4BE iniative
  Ingrid Maes (Inovigate)
• Remote monitoring (mHealth)
  Hans De Clercq (Bytesflies)
• Panel Debate Session 2

12:50-13:50 | Lunch Break

13:50-15:00 | Session 3: Data Diversity Unveiled - Exploring -Omics, Clinical, and Brain-related Data in Real-World Scenarios

Moderator: Liesbet M. Peeters (UHasselt) and/or Dipak Kalra (i~HD)

• Keynote 3: Assuring Research Excellence Strategies for Assessing Data Quality in European Projects
  Jens Declerck (i~HD)
  
• OHDSI Belgium
  Annelies Verbiest (UZA)
• EBRAINS Belgium
  Wim Vanduffel (KU Leuven)
• ELIXIR Belgium
  Frederik Coppens (VIB)
• Panel Debate Session 3

15:00-15:20 | Coffee Break

15:20-16:30 | Session 4: Synergizing Tomorrow - Unveiling Strategies to Maximise Collaboration and Progress

• Arisal of Data Spaces: Why I am excited and worried?
• Panel Debate
  Moderator: Liesbet M. Peeters (UHasselt) and/or Dipak Kalra (i~HD)
  Piet Stinissen (Health Campus Limburg), Sofie De Broe (Health Data Agency), Bert Vaes (Intego), Hans De Clercq (Byteflies), (BeMedTech), Annelies Verbiest (OHDSI), Frederik Coppens (ELIXIR)
  • Example of questions that will be addressed:
    • How can we ensure strategic oversight?
    • How can we maximise synergy?
    • How to co-create a joint strategy?
    • What's next - aspirations for the future?

• Closing remarks
  Liesbet M. Peeters (UHasselt) & Dipak Kalra (i~HD)

16:30-17:30 | Networking Reception